With heavy hearts and deep sorrow, we share the news that Alyssa Leonard passed away on January 11, 2025, at the age of 26. Alyssa’s journey was one of grace, courage, and an unwavering spirit. She was just eight years old when she first became part of the Bert’s Big Adventure family in 2007, joining us for a magical trip to Walt Disney World.
That trip marked the beginning of a lasting connection, one that would span nearly two decades, touching countless lives along the way.
For years, she bravely fought a battle against brainstem glioma, a rare and aggressive tumor that affected her brainstem—the vital area of the brain that connects to the spinal cord. Her resilience throughout the years has inspired so many members of the Bert’s Big Adventure community.
Alyssa held a special place in the hearts of the Bert’s Big Adventure staff and everyone who had the honor of meeting her. She was kind-hearted and a source of immense joy. She had an ability to make anyone feel seen and valued, lighting up every room she entered with her infectious smile and, most memorably, her laughter. Alyssa’s heart was as big as her spirit, and her love for her family was unshakable. They, in turn, adored her deeply.
Her loving mother, Angela, shared the following tribute to her daughter:
Having known Alyssa made us all better. We are grateful for the gift of being in her orbit and learning from her inherent wisdom.
In 2007, during the 5-day trip to Walt Disney World, Alyssa and Bert built a beautiful bond. The two have continued to foster their meaningful relationship over the last eighteen years. Alyssa lovingly referred to Bert as her “Godfather,” a high honor and a true testament to how she viewed their connection. In 2023, Alyssa reflected on this connection with her characteristic warmth:
Alyssa has been a regular at quarterly reunion adventures since their inception – always smiling, always sharing stories, and forever laughing over jokes. She brought joy wherever she went, and her absence will be felt deeply in the hearts of all who knew her.
Bert shared a final, heartfelt message about Alyssa:
Please keep this family in your thoughts and prayers as they grieve.
Get ready for some magic! Our 2025 Bert’s Big Adventure families gathered together for an amazing New Family Orientation, thanks…
SURPRISE! We’ve been keeping a BIG secret, and we’re so excited to share all the magic with you. We’re off…
While we all love surprising deserving families with the happy news that they’ve been selected to go on Bert’s Big…
On Thursday, January 23rd, prepare for an unforgettable evening of laughter and storytelling as The Bert Show takes center stage…
At only two years old, Ivy’s life changed forever when she was diagnosed with Nephrotic Syndrome – a kidney disorder…
Since 2002, Bert’s Big Adventure has been building lasting friendships among truly incredible kids and their families as they navigate…
Our next Fairy Godparent spotlight belongs to the amazing Amber! Here’s what she has to say about her Fairy Godparent journey so far.
