It is with the most profound sadness that we share the news that 24-year-old Lacee Lallerstedt passed away on July 8, 2024. Lacee joined Bert’s Big Adventure and went to Walt Disney World with the organization in 2004; She was just 4 years old at the time.
Lacee was born with Spinal Muscular Atrophy, a genetic disorder in which the loss of nerve cells in the spinal cord affects the part of the nervous system that controls voluntary movement.
During the 5-day trip to Walt Disney World in 2004, Lacee especially loved her time in the Magic Kingdom with her family. Following the trip, Bert reflected on his experience:
“I got the honor of riding with Lacee in the parade. Here she comes in her beautiful new Cinderella dress to be the Grand Marshal, and it was awesome. She was waving at everybody on both sides. When the parade was over, Lacee was with her parents, and somebody brought over a glass slipper and gave it to her. I just lost it. Hanging out with her and all the kids as Grand Marshals in the Walt Disney World parade is something I’ll never ever forget and I’ll always cherish.” -Bert during The Bert Show’s 2004 broadcast in Walt Disney World
Lacee was truly one-of-a-kind and loved music and her family. She held a special place in the hearts of the Bert’s Big Adventure staff and everyone who had the honor of meeting her. She was inspiring, kind hearted, and beautiful.
“Lacee was the cutest and sweetest 4-year-old girl you’ve ever seen when I met her two decades ago. In those few short days, she truly stole my heart. I remember thinking at the time, as the Bert’s Big Adventure Family Reunion Adventures program had not been established yet, that I may never see her smiling little face again. I remember how heartbroken I was thinking those thoughts, but that doesn’t compare to how heartbroken I am now. Rest in peace, sweet Lacee.” – Dr. Tom McQuail, Bert’s Big Adventure Medical Volunteer
Please keep this family in your thoughts and prayers as they grieve.
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